Week 1 post infusion was awful as my last post confirms. I was so sick for about 4 days but it passed. Did you see the Louis Theroux show about drinkers? For about 4 days I was the guy in the advert, dying for steroids! I read that the recommended daily dose for steroids is 5-60mg a day, for 3 days I was getting 1000mg via IV. My nurse friend said it was pretty mean making me go cold turkey after that!
Week 2 was not great either got an awful cold on Monday and was in the docs by Friday getting antibiotics for a chest infection. Week 3 was ok just back to the usual aches and fatigue that I had before treatment everyday.
I'm back working this week but from home thankfully. I've found my concentration is really lacking and I'm tired still!
I really hope Lemtrada tackles fatigue and my muscle aches. I miss the feeling of waking up occasionally ready to go with loads of energy. I didn't appreciate it when I had it!