I'm now nearly 2 months post treatment, the time has flown by! I'm back to work and normality. Life has been uneventful since returning to work, I've been feeling good just weighed down by fatigue but it hasn't stopped me doing anything.
Just 2 weeks before treatment we moved house and I got a joint mortgage with my partner, all very serious!
I couldn't be happier, he's been the best support I could have had over the last few years.
However we argued about money recently and the root of the problem is not our joint love of eating out or expensive taste in rum it is bloody MS!
It's his first mortgage and I remember the sudden realisation of financial responsibility that came with mine when I bought my flat. The thought of loosing income is really scary. It means you'd be homeless. We had budgeted before moving but hadn't really included any savings in that budget. Now he's afraid of the idea that I could have to be off work with a severe relapse at any minute and if I wasn't being paid we would seriously struggle. That's the crux of it. The complete unpredictability of my situation.
I'll be honest, it's shit.
To add insult to injury of course I can't get critical illness cover anymore. We went through a mortgage broker and one day a few months back I was suddenly being asked if I had any long term health conditions over the phone whilst at work as the broker rattled off a list of what notify able conditions were included. Probably expecting a 'no', I mean he knew my age, knew my job title, knew my financial situation. He probably didn't expect me to say 'err yes, that's me'. It was the first time I'd told anyone other then those closest to me. It was met with awkwardness and so I made a light hearted comment to diffuse the situation.
'Yeh it'll be too late for the critical illness cover, got one of them already!'
Again the lack of cover makes me feel ever more financially vulnerable.
So the other half and I argued but in hindsight I feel bad about it because it can't be easy for him vowing to stay with me and making such a big financial commitment when I'm basically a ticking time bomb of dependency.
As you can probably tell, this is still the big issue I'm having getting used to this diagnosis- the probably lack of independence in future.